Monday, November 17, 2008

Refridgerator Tension


I find myself daily in a personal struggle that I've named Refridgerator Tension. This tension centers around being the "purchasing officer" for the edibles in our household. I find that the fridge serves as a central barometer of how much food is actually available in the rest of the house. When the fridge is full, my family is living in the land of "milk & honey". When it is bare, all other cupboards, freezers, and shelving units seem equally depleted. Having too much in there causes major tension when trying to close the door. However, too little makes my prodigy feel instantly hungrier even DURING a meal. When a gallon of milk is finished I hear, "When are you going to the store?" To which I reply, "NEVER. I suggest you drink s-l-o-w-l-y!"

I personally get this quirky thrill when I discard the cardboard yogurt tray after we finish the collection of yogurts. (At Aldi you can buy them like that.) However, I immediately fear that I'm going to "need" another on soon, so I mentally bump my grocery run to today.....something I don't enjoy.

As I've pondered it, I've realized there are countless tensions related to that large, energy sucking appliance. Here's a few others just off the top of my head...

There's the cost of filling it, and the hassle of emptying it (especially the moldy things in the back). There's cleaning it on the inside, as well as ridding the clutter that accumulates on the top (a definite weakness for us tall people). There's keeping the temp right so the milk doesn't look like slush in your cereal and the ground beef doesn't grow bacteria before dinner.

What about the endless condiments that usually fall OVER when the door opens and often fall OUT because they're too slim to be held in? I often have issues with the mayo not fitting with the mustard and ketchup....nor do all the veggies fit in one drawer separate from the bag of apples. (I've been warned about mixing carrots and apples, but don't remember why.)

My parents had a scare a few years ago when their fridge stopped working and they learned about cleaning off the back coils with a sweeper. Ugh! That clearly involves MOVING the beast, which then exposes the floor. Double Ugh! (I can't refrain from mentioning the dead mouse we found one time.... Triple Ugh with a fur ball on top!!!) You heard me say, "stopped working"? I should then add the financial scare that a normal family experiences if this appliance takes ANY breaks ever for ANY reason. Isn't this the first thing we worry about in a power outage?....okay maybe that's the heat (or A/C), but it sure is a close second if the disruption lasts more than a few hours.

Look at this list of stresses! Aaah! And I didn't even mention the fact that it is THE ICON for overeating (think Garfield!) That adds a whole list if issues and stresses.

My heart is to find peace in the tensions of my life and Refridgerator Tension should be no exception. As I approach our holiday season which too easily centers around food (& then Jesus), I'm aspiring to recycle this tension for thankfulness that I even HAVE a fridge to fill. After all, I live in a land if bigger fridges than ANYWHERE else on the planet.

P.S. Pictured here is a fun marble toy that often causes my son his own version of refridgerator tension.

Wednesday, August 6, 2008

Summertime!

July has come and gone and with it were many fun times! We began with a new nephew/cousin on the Carrington side. This makes 6 nephews/boy cousins and one more coming in October.....and no girls in sight. Erica is starting to wonder.

The second week of July, we took a trip to southern Indiana for a 3 night family reunion on Jill's grandfather's side. This has grown into a fun getaway, so we all had a great time. Teagan even got to bring home an extended cousin, Taylor, for the week following. The 3rd weekend called for another trip south, though not as far. This time it was Jill's grandmother's reunion. Immediately following our return, Tim and Teagan loaded up a calf and were off for fair week, which is a big deal in our county. Much of their time was spent there for the next 5 days. The final days of July were a refreshing slow-down at home. I appreciate the days when we don't have to get in the van and go anywhere.

August marks the beginning of football in our family. Tim will begin officiating with a few scrimmages this weekend. Teagan is going to play on a local team. This is his first year and he's VERY excited.

Erica has had the opportunity to learn to ride horses through a longtime friend. She has shown a natural gifting in handling larger animals (both the horses, as well as our calves). It is beautiful to see how God has designed her and opened up opportunities for her to learn and grow in that gifting.

As for Titus, Bridgette, and I, we never seem to run short of things to keep us busy .....well, let me rephrase that....let's say, I have an endless list of things I need & want to get done....but keeping THEM busy IS often my #1 priority!


God is GREAT!
When I focus on that, the details seem to fall into place.

Until next time...

Saturday, June 28, 2008

Wow! Time has flown. Life is hard to keep up with and my hobbies seem to be the first to go on "Hold".

Bummed! The day after my last post, I had another migraine headache! Ugh! Here I thought they were over since I'd gone 2 weeks since the last. Ugh! We cancelled the kids' library obligations and called Grandma for help. After a 3 hour nap, I felt better and the kids came back home. So inconvenient. Such a bummer for my kids who had done their chores SO faithfully that morning. Such a blow to my momentum of getting our household caught up. Yes, I was quite discouraged!

My precious husband, called Dr. Pizlo and together they decided to have me go back on Plavix (the one that caused bruising). Now 3 1/2 weeks later, I've only had 2 headaches that were "managable" and a bit less dizziness when I get out of bed in the morning. (I won't miss that after October!) Right now it seems that it's just a matter of waiting. I do have about 5 bruises on my arms and legs, but they cause no pain and are much easier to endure than migraines. Ultimately, I think a tan will be my best way of dealing with them. :)

Follow-up.... On Monday, June 16th, I had my follow-up appt with Dr Hoyer at Riley. The echo and chest x-ray both looked great. I also took Teagan, Erica, & Titus to meet Dr Hoyer since he was so instrumental in fixing my heart. This has been a big deal for our whole family and I knew they would appreciate being able to put a face with the name.

Dr Hoyer was able to show them a sample of the occluder that is now in my heart. Teagan was TOTALLY fascinated by that. (Hmm...a little engineer??) He also showed all of us the 2 pics from the chest x-ray showing little white dots were the occluder is sitting. I really appreciate the time he took with us each time I've met him. I know he was paid handsomely for his work, but his willingness to answer our questions thoroughly made it easier to see that he earns everything he makes.

Relief. Coming home, I realized that hearing such good news really helped me relax about my recovery. Not only, did Dr Hoyer remove any restrictions I had (lifting & running/exercise) but just having him see that the progress was going well, made me feel more "normal". At this point I'll stay on the Plavix for 2 more months and then go to 325mg aspirin. He doesn't think I'll get the migraines later on because I'll be farther along in the healing process. We'll see. I assured him that his email box would be full if I ended up with those again. :)

Well, this blog is more boring and factual than most I enjoy writing. Perhaps we can move on to more interesting things now that I've been given the green light to "carry on with life as normal". Whatever that is!!

Monday, June 2, 2008

Easy Recovery?

Re-cov-er-y: The "restoration or return to any former and better state or condition".

Bzzzt. Bzzzt. My mind just crossed wires. These days it is hard for me to process quickly. I'm pretty clueless on what "recovery" looks like for me since I didn't "feel" bad in the first place. I suppose the fact that I HAD a hole and now I don't HAVE that same hole means that I'm somewhere ON the road to recovery, by this definition. I am certainly in a "better state" to have my heart sharing the blood flow properly. I look fine, am not in pain, have no more bruises, etc. etc.

However, to be honest, I haven't blogged for a couple weeks, because I have been struggling with what to actually say. I've described the heart procedure with all its pre & post thoughts and prayers. I think we can all agree that was amazing from start to finish. The procedure really DID take only 2 hours. I really DID only stay in the hospital one night. Within a week I DID feel competent to resume some normal activities like driving, laundry, etc. So life is back to normal, right?

No. Of that I am sure. Regardless of the fact that I've never found a "normal" day in my life, I am pretty sure I'm not operating at my typical level of activity. First there are some obvious issues that have arisen....

EMOTIONS - Soon after I came home, the emotional side of the whole ordeal caught up with me. Because I was passed the most stressful parts, this took me completely by surprise. Here I am with my heart "fixed", yet my emotions often feel like I 'm falling apart? I was SO BLESSED to have had various friends and family provide meals for a couple weeks in early May. It felt silly since I was physically competent to get around, however, it significantly lightened the burden of keeping up with my family while I was emotionally frazzled. Thank you, Shari for convincing me that others want to bless us in that way.

MIGRAINES- To Aunt Joyce, I'll say, I took your advice and tried hard to "take it easy", though my personality has a hard time resting when work is sitting in my line of view. However, I waited a full week to drive and 2 weeks to go somewhere without another adult. You can imagine my frustration when after 2 weeks I drove 40 minutes to take Teagan to get shoes at a mall. (Yes, I could have stayed more local, but this involved exchanging his old ones for FREE new ones, so I made the drive on a Saturday morning.) Upon arriving at this mall, I began seeing spots, something I've only experienced as a precursor to a migraine headache. It totally freaked me out, because I was so far from home without the ability to see clear enough to drive.

I "hung in there" and thankfully Teagan knew how to pick out the shoes. After a seemingly endless check-out experience, we got back in the van. By then, the spots had gone away and I felt a growing headache coming on. I took time to really make sure that I felt competent to drive in busy traffic before heading out. With a fair amount of mental coaxing, I was able to push through the pain and get us home. I immediately went to bed with what then had become a migraine and I was shot for the rest of the day. What a wonderful way to spend a Saturday!

The next weekend I had another migraine. It was equally frustrating though a different scenario and much shorter lived. In the meantime, I had been in contact with Dr. Hoyer and he relieved me by saying that a few of his patients have experienced a few migraines in reaction to their healing process. He was sure that mine would eventually stop, and after these 2 I have not had one since. That's a relief!

BRUISING- I was originally put on Plavix and Aspirin to thin my blood to avoid any clotting during the 6 month healing process. After a week of this, I had bruises on my arms and legs from "who knows what". Two bug bites really made me concerned because they each had a big bruise-band around them. (Kinda like a donut....a ring of bruise with an uncolored bump in the center....about 2" across!) Eeek! If this is what I look like in May, I'll look like Tim beat me if I dare go walking in the summer. After a few emails with doctors, it was decided to end the Plavix and up the Aspirin dosage.

REGULAR HEADACHES- I don't think 325mg of Aspirin is enormous when comparing with other blood thinning meds, however, for me, I can tell a difference in my body. When I get up, I often get a "head rush" that makes me have to pause a minute before proceeding forward. This slightly dizzying sensation seems to come from a place where I easily feel headaches, especially when I'm hot, tired, hungry, or in bright sunlight. These are MUCH more manageable than the migraines, but still frustrating when they zap my energy and leave me short-fused and unable to think clearly. This often happens with little warning when I've already committed my energies to whatever that day holds. Ultimately, I find myself in an endless struggle of how much can I really handle? I've always been one to "earn" my funtimes by working on undesired projects first. These headaches have often left me feeling like I lost out on the desired reward that I "worked" so hard to earn. What a bummer! Finding balance has been a big struggle.

The UP Side- My naturally optimistic side won't let me end this post without a counter-balance to all these negative experiences. These mean the world to me in spite of the fact that this section is much shorter than the former.

Amazing! I keep using that word, but it's the only one close to describing how easy the physical healing has been.

Gratefulness! God has provided SO MUCH! I cannot complain one bit.

Love. From God. From an awesome husband. From family. From friends. From folks I hardly even know.

Provisions... Food. Money. Time. Sitters. A vehicle. Cleaning. And more.

Holy Spirit to bring to mind all the things that I can't possibly keep organized on my own right now.

What more can I say?

Saturday, May 17, 2008

This is a STICK-UP!


I mentioned back during the early testing of the numerous sticky tabs that had been put on my upper torso. The most I had at once was 12 which was during the esoph-o-gram at Goshen. 3M certainly earns a fair prophit on these nifty little patches. During both hospital stays I wore 5 at all times. Each had a wire snapped onto the silver button and plugged into a cordless monitor called a "tellie" that fit in the pocket on my gown. This gave the nurses constant monitoring of my heart rate. I usually had 2 tabs on the backs of my shoulders, 2 in the front near my waist, and 1 actually near my heart. After a while it became "normal", but my nerdy side got a kick out of counting them over all.
There was...
5 - First EKG at Dr. Haimes Ofc
5 - Tellie whole time while at Goshen
4 - 1st Echo
7 - Esophogram
4 - 2nd Echo
3 - Cardio MRI at Elkhart
6 - EKG at Dr. Pizlo's Ofc
4 - Echo at Dr. Pizlo's Ofc
5 - Tellie whole time while at Methodist
5 - During Catheterization
4 - Echo at Methodist
Current total stands at 52 !!
(And lots of rubbing alcohol needed to get rid of them.)

Afterwards on 4/25

Since Tim did such a good job at posting throughout the day concerning my recovery, I'll only fill in a few things. One that stands out most is the fact that I got dizzy and passed out when the nurse was removing the first of the 2 shields from my leg. This proves that though I'm better off, I'm still not invincible.


As I've written before, I'm not one for the sight of blood. I've known this and spent my life accepting this weakness. After the procedure was through, I was instructed to keep my head back on my pillow and my right leg straight on the bed. This would avoid any added pressure to my stomach region while the shields were still in my leg. At the time, I obeyed but didn't know that I even had anything still in my leg. These shields caused my foot and leg to gradually become numb like they were falling asleep. After 90 minutes or so, the nurse asked my family to leave so she could remove them. Maureen, the nurse, advised me that it would hurt a bit so to take a deep breath and hang in there. I did and she pulled out what looked like a fat straw-like tube from my thigh. Wow! That hurt.


The best way I can describe the feeling is like when I've slept with my arm over my head and the blood drained out leaving it heavy and immoveable. (This used to happen almost every night when I was pregnant.) Eventually, I would wake up and use my other arm to move it down below my heart. As blood began to properly relocate, it would feel tingly, in an almost painful way. (Not really a pleasant habit to repeat every night. I even consciously tried holding my hands in my sleep to avoid this, but alas, it never quite cured me.)


Back to our story, I think my mistake was in seeing the actual tube. Had I not seen it, I might not have gotten dizzy. However, I was also experiencing that tingly, pain-like feeling in my whole leg. It was a lot more discomfort than my arm had ever been, so perhaps that was the reason for "escaping". I remember saying, "I'm feeling dizzy" to Maureen and the next thing I knew was she was calling my name trying to wake me up. I had no idea where I was or who she was. It was almost as freaky as the original episode at home, only when I realized my location, I had a nurse within ear shot to help me.


Maureen looked both alarmed and relieved. She immediately called the other nurse to start my IV with something clear. (I think just fluids.) She said I wasn't out for long, but I sensed she felt as nervous about it as I did. This whole time, she was firmly pressing on my thigh wound, to keep it from bleeding. She was not able to leave my side until she could remove the remaining shield and get the bandage on. Thankfully, she wasn't in a hurry.


The second tube came out MUCH easier. I took a big breath again, but it was neither as painful on my thigh nor down my leg, likely because the blood was flowing more normally by then anyway. I DID NOT LOOK to see if that shield was as large as the first one. Been there. Done that. Eyelids are meant to be shut sometimes. :)


Maureen was quickly able to stop pressing on the wound and covered it with a 1/4" thick gauze square and a huge clear patch of bandage tape (prob'ly 5" square). I wore that for almost 2 days and when I removed it on Sunday morning, the blood had not even seeped through the first layer of gauze. She really had gotten the bleeding stopped. Amazing! Also remarkable was the wound was fully closed for me to take a shower. There was absolutely no burning or stinging, just a 3x5" bruise. After the shower, I placed a small bandaid this size on the "hole", mostly because it seemed wrong to go from 5x5" tape to nothing. The next day when I removed it, the bruise area was darker in the exact shape of that little bandaid. Apparently my skin was so sensitive to bruising, that just removing the bandaid had made it worse. I wore no covering on it after that. It's just amazing that 2 tubes were stuck IN my leg through a HOLE a little smaller than this penny and in 48 hours it is totally healed closed. Wow!


Until this spring, I did not realize that passing out was so serious, nor so rare. Of course, I didn't think it should be frequent or anything, but I still have questions on the rarity. I've heard many childbirth stories of husbands and wives having trouble after experiencing various levels of pain or gore, and the dramatic results that "smelling salts" can have in helping either recover. I have not done research on how it happens or the resulting consequences, so I can't offer any new information in that area. All said, it does alarm me some that I had that episode in the hospital. For one, it is the first memory I have of passing out when I'm already laying down (my one tried and true method for avoiding it). Secondly, it is a bit alarming to do something uncontrollable that makes a nurse nervous. And lastly, it forces me to resolve that the hole in my heart wasn't the only thing responsible for that weakness. Thus meaning that I still need to be careful and use caution in gory situations. That last part actually makes me glad it happened THERE, so that I would know that I am still not invincible.

As a good obedient patient, I did my bedrest till 8:00pm that evening. The only uncomfortable memory I have is the bedpan that I HAD to use due to the added IV fluids. This happened to occur at "shift change" time for the nurses, so my call button was left blinking for quite a while. I should have just pulled a heart monitor sticky tab or two off my chest and I would have gotten quicker attention. However, I've tried to be an honorable patient for both my husband and my nurses, and I think God thanked me by sending a very kind and gracious night nurse for my final night's stay.

Saturday, May 3, 2008

You WOKE Up?

Back to the benefits of being early, I should add that when you are running early, you are also ready for others that are running early. Such was the case for my heart procedure on that Friday. Apparently there had been a cancellation, so instead of having me wait, I was able to go ahead at 11am instead of noon. Dr. Hoyer himself showed up at 11am to let me know this. He was a middle age man with a kind smile and a pleasant demeanor.

After taking time to discuss with Tim, Mom, & me about the procedure, he also explained the possible risk of this not working, which would lead to open heart surgery. I was not real alarmed that this would be necessary, but I felt nervous that if it did, it would be done while I was still sleeping. Would their be a slit in my chest when I woke up? Would my hospital stay be 4 days instead of just one? I do remember Dr Hoyer asking if I wanted to be awake for any of it and I squinted at him with, "No, I don't think so." Based on Dr. Hoyer's confidence and his past experience, most likely all would go well. God is faithful to be trusted at these times.

I will say that preparation for this was not as extensive as I had expected. Upon first arriving, I was asked to put on a hospital gown and fill out a medical form about myself. The form was missing the normal medical questions one would expect and instead seemed more appropriate for a doctor asking a patient questions. I did the best I could to fill in the blanks. Soon a nurse came and grabbed my right arm for a blood pressure check, while another grabbed my left to set up a port for an IV. I suppose they were trying to be efficient, which is well intended, but after looking at my height and weight on the form, they attempted to be humorous in asking what it was like to be that size. What? Not only did their unprofessional chatter rub me wrong, but then a third nurse handed me a food menu for me to choose what I wanted to eat after I was done....not a great way to help someone that is supposed to be fasting. By then I was becoming quite annoyed.

Two weeks before when I was preparing to go for an "esopho-gram" at Goshen, a nurse had gone through quite a checklist before I left my room for the procedure. I was told to remove my little stud earrings, my watch, and she taped on my rings before I could offer to give them to Tim (I avoid tape when possible!). I was required to remove my contacts and wear glasses and some of the bands on my braces. Of course, they were going into my mouth, so some of that is logical, but my point is that it was all very thorough. I'm sure there's no "lost and found" at the door in the "esopho-gram" room.

One would think that if you are having your heart FIXED, it would be a bigger deal than if its just being LOOKED at. Thus, was the reason I wore larger hoop earrings. I figured I wouldn't lose them in my bag if I removed them. (Yes, I could have done without them all together, but remember how going through the normal prep for my day kept me calm, well it also meant I put in some earrings.) As for glasses, I never even thought to bring those along. In the end, none were even mentioned. When I was taken to the room to have my heart fixed, I had on silver hoops, contacts, & tapeless rings. Anyway, back to my story....


Fortunately the nurses finished checking me in and left as quickly as they had come. Once Tim and Mom joined me, I relaxed a little and proceeded to pick out far more food from the menu than I would later want to eat. (Fortunately they only brought the 2nd half.) All was soon followed by Dr Hoyer and his humorous assistant, Dr. Breinholt, who, as I mentioned, were running early. This beforehand experience made a stark contrast to the thoughtful explanations and patient answers they gave. When choosing between the two, I'll take a great heart doctor over a kind nurse any day!


It was with teary eyes that I said good-bye to my family. My dad and my in-laws had arrived just as Dr Hoyer was talking. How can one not cry on such an occasion, if not for the separation, then for the weighty awareness that life will forever be different after this day.


In my bed, I was wheeled down the hallway to a room called a "cardio cath lab". Basically, this just means they regularly insert tubes into hearts in this room.....most of which are for stints and other heart issues. Here is a picture of a lab I found online. It is similar to the table that I was transferred to.


The room was cool to keep bacteria and infection low. The table was narrow, so they had to insert plastic holders to rest my arms at my sides. The assistants were friendly and discreet. As opposed to the pictures, I did not have the nice blue cloth covering me, so I think I fell asleep soon, because I don't remember shivering under only two well placed towels. Instead of being put "under", I was just given a sedative through my IV which made me sleep and they apparently did some sort of local on my groin area, obviously while I was napping.


Next time you hear that someone is getting a catheter inserted through their groin area, this is what you should think of. Pictures do so much more for most of us than medical words and detailed descriptions. At the opening, there was a sort of straw length thing called a sheath. In my case, there were two put into my artery, one to use for the tiny camera and one for the amplatzer (the piece to fill the hole). Until I saw this picture, I didn't realize that they approached the heart from the left but around to the hole from the right.....at least that's what I see here. I don't really know for sure.


Below are a couple more photos of the equipment used during the procedure. There were only 4 panels of monitors in my room as opposed to the one with six. I know this because at some point, I woke up.


Truly! Even now when I think about it, I get kind of weirded out. But at the time, it wasn't really that big of a deal. The sedative that I was under must have kept me at a "low-doze" because I never really felt like I had been asleep except for the obvious lack of shivering and the fact that it felt like only 25 minutes instead of 2 hours. I woke up gazing at these monitors.


My first memory was of a very hazy gray x-ray with an obvious black line going up to a balloon that was being inflated. I later learned that Dr. Hoyer inflated a balloon in the ASD (the hole) to get a precise measurement of what size amplatzer to use. I remember him asking if I was okay, to which I answered, "Yes". I then remember thinking, "Oh my gosh, right this second there is a balloon like thing inflating IN MY HEART and I don't even feel a thing! THAT is incredibly bizarre!" I continued watching until the square x-ray machine above my head tilted like the one in the picture. At this point I said, "Hey, I can't see." (Nicely, not rudely) To which he replied, "Yeah, I'm sorry." The canter was jovial, but did not lack professionalism. The assistants joined in as well. (Yes, very dream-like, but totally true). Their activity was calm and relaxed...too boring for the show ER.

At that point, one of them must have upped my sedative, because I don't remember much more until he was almost done. I remember seeing the same hazy gray chest x-ray, which did not show obvious clarity to me. It amazed me that he would have such a well-trained eye to know how to read the slight changes in gray color tones on the screen. This was not an obvious "match the circle into the hole" that you might find on Sesame Street. Even the pictures here are much more obvious than the screens I was looking at. The one at the upper right probably measured blood pressures in the aorta and other areas. I know they kept track of those during the whole time, but the squiggles didn't seem to move in tune with a normal heartbeat. It all seemed like Greek to me.

Soon enough I was told that all was done. Once the square machine right over my chest was moved out of the way, I saw the clock on the wall. I remember asking, "Is it 1:05pm?" "Yes." My mind then registered, "Okay, I must be thinking clearly. Yes, it did take about 2 hours. I can't believe it's over! YES! I don't have a huge cut on my chest, so it really worked!"


My leg must have still been pretty numb when they transferred me to my bed, because I don't remember any discomfort...a nurse had gotten my gown on me too. Before I knew it, my bed was being rolled down the hallway.


It was great to see family then. We were all celebrating the relief of "the wait" being over. From their side, it had taken over 2 hours, and they vividly remember a hush coming over their conversation at about 1:15pm. All were hopeful that they would have gotten word if surgery had been required, but none was able to relax. I'm glad they didn't have to sit in that tension for too long. God was faithfully watching over each of us.....as he does every day!


I'll close by promising to come back with details of my recovery. I know many of you were praying at many of these moments, so I'm glad to share the journey from my perspective. I am also anticipating the memories I'll cherish in future years when I come back to read this for my own recollection. Thanks for bearing with me as I record all the details.